A guide to thinking about Disability

 

 

Somebody may have come to your Church once and vowed never to darken your doors again, because there has been no provision made for their disability and there was nobody present, who was prepared to assist or support them when needed.

 

This guide has been written to try to answer the question, "How can we make provision to support those with disability"? It is intended for stewards (both property and society), preachers, worship leaders and church council members. It is concerned with practical issues, and includes some thoughts on employment both of ordained and non-ordained people

 

Whilst not intended to be the definitive solution it is a selection of ideas to help guide your thoughts. If you want an expert, then look around for disabled people, there are lots about and they are experts in their specific disability. You already have experts concerning your building - yourselves. There are also various charitable organisations which specialise in particular disabilities.  ‘Through the Roof’ offer general advice on issues of access and inclusion. Their ‘Roofbreaker Guide’, which includes theological perspectives of disability, is extremely helpful and has recently been updated with the help of Jo Stephens (both are mentioned in the resources page at the end).

 

The acceptance of people with individual needs into your building should be anticipated, not reacted to.

 

If you want to discuss disability matters related to your premises, please contact me. I will do what I can to assist by phone. Please e-mail me photographs and sketches; if it is necessary I will come to your church and look at the problem for myself.

 

I often find that individuals contact me to attempt to re-enforce their own opinion. I will not always do that. However, I will give what appears to me to be to correct answer in accordance with the legislation.

 

 

Bob Finch

Beds. Essex and Herts. District

Disability Awareness Advisor.

What is disability?

 

This guide is based on the social model of disability, that people with an impediment are disabled by their physical and social surroundings and barriers, not by their own situation.

 

Disability and long term medical conditions include:

 

Arthritic joints   Wheelchair use     Blindness and visual impairment

 

Dyslexia     Hearing loss        Incontinence       Learning difficulty

 

Mental frailty        Missing limbs    Muscular weaknesses

 

Reduced/excessive growth  Dementia  Poor memory

 

Also included are a variety of long and short term illnesses and impairments, including Epilepsy, Schizophrenia, Aspergers Syndrome and a wide range of other situations.

 

 

Some people suffer from dual or multiple disabilities, which create extra challenges. Able-bodied people cannot and should not decide who is disabled, as many disabilities are hidden. Provision should be made to ensure that nobody is placed at a substantial disadvantage compared to others. The responsibility for that provision rests on everybody but church trustees and property officers are ultimately responsible for taking appropriate action.

 

People with disabilities also have a responsibility in that they need to tell people what would help them to feel totally included.

 

N.B. Toilets are NOT disabled, they might be, 'designed for people of reduced mobility' or they might be 'Accessible Toilets' but never, I hope, 'disabled'.

 

 

 

 

 

 

 

 

 

The Law

 

The Disability Discrimination Act 1995 (mainly Sections 20 and 21) and various regulations state that property owners and managers are required to, 'take reasonable steps' to alter or remove a feature of a building where a service is provided (no pun there), in order that a person with a disability will be able to use the building to the same extent as other people.

 

If trustees and other responsible people fail to comply with the law, they could be held personally financially responsible in the courts.

 

The purpose of disability legislation is to ensure that all facilities are accessible to all people, so far as is possible and reasonable.

 

‘Reasonable’ is not defined but the law does not intend to create total chaos or financial instability, whilst it does require reasonable adjustments to take place to support people with individual needs. Doing nothing is not an option, at the very least a potential situation must be considered and reasons for action or inaction documented.

 

A wide range of publications and advice leaflets are available to send for. Some are mentioned at the back of this leaflet. Would it be unreasonable to fail to send for them? Would it be unreasonable to say, "Oh we can't afford any of that", and do nothing? Would it be unreasonable, when offered the chance to discuss what can or could be done, not to do so?

 

It is necessary to show that action to conform to the Act has been taken. It is important that decisions made are recorded in minutes of meetings. Sources of funding are mentioned towards the end of this paper.

 

This paper outlines issues to consider. It cannot be comprehensive, as each building and each disability will be different. You must do what is necessary in your circumstances. This is a booklet giving some ideas - you must decide what has to be done.

 

 

 

 

 

 

Arthritis

 

Turning, twisting, sitting, standing, walking and lifting problems.

 

Changing taps and door-knobs from twisting to lever-operated can be helpful, in the case of taps it may mean just changing the top part of the tap, not a full re-plumbing job.

 

A few soft cushions might help those who find sitting a problem (they will tell you if you ask). At least 10% of chairs should have arms to help movement and provide support for those who need it.

 

Ensure that light switches operate easily.

 

Ensure electrical sockets are easily accessible and preferably at waist height.

 

Changing plugs on mobile electrical equipment to plugs with full circle grips is helpful.

 

Door handles (not knobs) that move easily and keys that work first time are a benefit to all.

 

Constantly expecting people to stand then sit then stand again can be distressing. The words, "if you are able" or "or sit with enthusiasm" can help people feel more comfortable with their worship.

 

 

Visually Impaired people

 

Buildings

 

Signs and notices need to be in good contrast. Black or dark blue on a pastel coloured background (gloss white backgrounds shine and dazzle some people).

 

Switches surrounded by contrasting colours (white switch with dark blue switch surround). It is often the case that switch surrounds can be obtained only in clear plastic. This may be an opportunity for the young people of the church to provide some coloured inserts to give the necessary contrast.

 

Toilet door notices that are identifiably different with contrasting backgrounds and if possible appropriate words in Braille.

 

Clear glass doors and panels should have something visible at eye level (both adult and children's level) to show that they are there.

 

Steps edged with clear white strips or edges painted white (so long as it contrasts). This is referred to in technical documents as a 'visible nose'. Slopes should be outlined top and bottom, and look and feel different underfoot.

Large print and BOLD print should be considered in publications.

 

Visually impaired people

 

Worship

 

Ensure that clear lists of hymns and bible readings available before the start of worship to help people find the appropriate places in advance of needing them. Bookmarks should be made available to place in hymn books and bibles in advance so that places can be re-found at the appropriate part of the service, not part way through.

 

Preachers and readers should be encouraged to announce the first line of a hymn as well as the hymn number (some people rely on memory) and if not using the full hymn or bible reading to say clearly which verses will be used.

 

The Methodist Resources catalogue has available Braille Hymn books (£10.00, page 11) and Worship books in large print (£15.75, page 4).

 

Projected items should be prepared in 18 point and printed in Arial bold (no serifs). Print copies should be supplied for those who cannot see the screen. Pictures on the projector need to be in strong colours with printed copies available for those unable to see the projection.

 

 

Hearing Impairment

 

Not all hearing-impaired people wear hearing aids and some people find them less than helpful. Support can be provided, which will help many.

 

Those wearing hearing aids may hear much better if a loop system is used. If questions are asked or discussions take place, either a microphone should move around, or the chairperson, through a microphone, should repeat the questions or points being made. A preacher seeking information from the congregation should ensure that answers are repeated so that all can know what has been said.

 

If loop systems in adjoining rooms are in use at the same time, a hearing aid will probably pick up signals from both loops; spatial separation is needed and people are best located at least 10 feet away from the adjoining system.

 

Microphone training for speakers will avoid difficulties for all, particularly those with hearing difficulties. Loud speakers need to be effective and the best for the job. Beware of multiple echoes.

 

Clear signs and notices avoid hearing impaired people having to ask for help.

 

Speakers should FACE THE AUDIENCE/CONGREGATION and speak naturally, a little more slowly than normal but retaining normal speech rhythm. Most of us see as well as hear what is being said; hearing impaired people can sometimes receive up to 80% of their information visually. A sermon delivered from the pulpit can normally be seen as well as heard. Preachers should be discouraged from shielding their faces, from moving about and from lowering their voices.

 

Readers, particularly youngsters, should be discouraged from speaking quickly.

 

Preachers should avoid changing the published order of service. Some worshippers may have no idea what is being said but can tell when a hymn is being announced or a reading from the bible started - it is embarrassing to start singing the wrong hymn, or using the wrong hymn book.

 

For some people, a lip speaker or a sign language interpreter may be needed; is somebody available? Could you locate somebody if needed? Is a member prepared to be trained? Many schools now teach British Sign Language, does your church have young people with these skills?

 

 

Dyslexia

 

Clear signs and notices with aids in visual form will help many people including those, who are dyslexic. If labels are kept simple people can often work them out and a picture may help.

 

Never assume confidence in reading/writing. Always ask somebody in advance if they would like to read. Never ask somebody to read an item out on the spur of the moment, unless you are totally sure that they can respond.

 

Don’t just put up notices for events, or just report them in the "order of service", announce events as well.

 

If you see a shaky signature on an attendance list, don’t comment on it.

 

Many people with Dyslexia benefit from reading through a coloured sheet, if such a situation is observed it is best not to comment.

 

Black on white is not always the easiest to read. Dark colours on a lemon or other pastel background can be helpful but different people have different colour needs. Where possible ask which colours help an individual most and try to use them.

 

 

Incontinence

 

Does your building have enough toilets? Some people may need to take longer than others. Are toilets readily accessible from the main rooms inside the building - why was it toilets were all built outside in years gone by? If you have a multi-floor or multi-site building, are accessible toilets really readily accessible?

 

How often are church premises used as emergency rest centres? What do people most need when evacuated from their homes - toilets!

 

Are all your toilets accessible, or are they also used as store-rooms? Is there sufficient toilet paper available? The big rolls in boxes are difficult to steal, household rolls are. But, some people find the big rolls difficult to use. Please avoid placing new rolls in toilets without ungluing the first sheet. It is hard enough for the fully able bodied person to 'open a new roll'. It becomes impossible for somebody whose fingers are not fully functional or who only has the use of one hand.

 

Most people like to wash their hands and dry them before moving on. Are the wash basin and towel supply (or hand dryer) sufficiently close to the toilet for a person to be able to do that without first having to re-seat themselves in a wheelchair? If not then if somebody is in a wheelchair this could become very unhygienic with all the unpleasantness that is caused as a result. When considering accessible toilets, apart from sufficient space, this should be a major consideration - not making the space look aesthetically pleasing.

 

Is the emergency alarm cord really accessible for somebody who may have fallen from a wheelchair or for some other reason is lying on the floor?

 

Are toilet facilities adequate for people with incontinence devices to deal with them conveniently?

 

 

In need of a wheelchair

 

Is there a wheelchair available on the premises to avoid people having to struggle to bring one with them? Some wheelchair users like to move from their wheelchair to ordinary seating, are the appropriate seats available and properly located to accommodate that?

 

Properly fitted out toilets (see previous paragraphs) of sufficient size with doors which can be opened from the outside in case of an accident are essential. 

 

Are alarm cords really accessible? If a person should fall whilst negotiating the change from wheel chair to toilet or back, could they from floor level or the position they are in reach the emergency pull-cord?

 

Changes of floor level can be managed by slopes (always ensuring the safety of others). Doorways wide enough to get through with a wheelchair need to be installed.

 

Places to sit in among the rest of the congregation or meeting are desirable to avoid people feeling segregated and 'on their own'. Access to the communion rail is important.

 

A conveniently placed table for hymn book, bible etc., or for meeting notes is appreciated.

 

Suitably located car-parking with bays wide and long enough for those who need it (sizes can be found in 'Widening the eye of the Needle' (see final page).

 

 

Mental Impairment

 

One in four of us will suffer from a mental health problem at some time in our lives – often temporarily, but for varying periods of time. Many churches want to help such people in their congregation or community but lack the resources and skills.

 

Clearly there are times when we need to acknowledge our limitations and seek help from professionals. If you do not already know how to contact your local community mental health team, look them up NOW - in the phone book under Social Services. In extreme cases you may need to contact the local police (who will know what to do in such an event). Why not write the numbers at the end of this booklet, or even on this page HERE.

 

Mental Health contact number …………………..

 

Local police ……………………..

 

 

However, there is a great deal that a caring fellowship can do to help - with support, training and guidance around appropriateness and boundaries. Is there a Mind and Spirit group that meets in your area? Why not send a representative along to gain a greater understanding of the issues involved and how to help resolve them?

 

 

 

 

 

 

Missing/malformed limbs

 

A shelf rest on the back of some seats will allow a person to place their hymn book, Bible or meeting notes in a convenient position.

 

Do doors open easily, or need two hands and a firm stance when standing to get them to move?

 

Are two hands needed to use equipment or toilets? People with missing limbs can usually do things for which others need two limbs but, with a little thought and effort, things can be made more convenient for them. Toilet rolls left ready to use, not brand new and un-started, are a good start.

 

 

Muscular Weakness

 

Many of the problems encountered will be similar to those encountered by those with missing limbs.

 

Chairs with arms will help people both to stand up and to sit down as well as rest. Sufficient space between rows of chairs is also helpful. Standing up too often during a service is difficult for some.

 

Asking people to stand, could be accompanied with a remark similar to, "or sit with enthusiasm", just to make it clear that standing is not compulsory – or why not, "If you are able, will you please, stand"?

 

 

Poor memory (which might result from a variety of ailments or illnesses)

 

Is there a clearly printed calendar of events visible to anybody who might like to see it? When they arrive this will help people remember why they have come in the first place!

 

Does a notice board show, 'today's events'?

 

Are the names of participants attached to event notices so that somebody who has previously agreed to take part can see what it is they are supposed to be doing?

 

Are there sympathetic people available who know who everybody is and where they live?

Is it intrusive or supportive to help somebody whose memory has failed them (and it is not always old people)?

 

Photographs of class leaders, stewards, ministers and preachers inform all, but will also help those with poor memory.

 

 

 

Reduced/excessive growth

 

These remarks may also apply to making the premises user-friendly for children.

 

Most cases of unusual growth are 'leg length' problems, generally body size and weight is similar to the population generally.

 

Toilets particularly need to be thought about, are they at appropriate levels?

 

Are the seats in meeting rooms and the church useable by people with short legs but big enough and strong enough for use by people with adult body weight? Are there some seats with 'space' in front of them?

 

Are lectern facilities suitable for shorter/taller people? Do you have clip-on radio microphones so that there is not complete reliance on fixed microphones?

 

Footstools can be helpful if short people are sitting on normal height seats, this avoids dangling legs, which can be painful on thighs and could cause deep vein thrombosis.

 

 

 

 

Unable to attend

 

Whilst not necessarily disabled, there are those, often older people, who, in the past, were regular worshippers at your church but are seen rarely now.

 

The book, 'Older people and the Church', mentioned on the useful publications page of this paper, gives some useful advice and suggestions about caring for and ministering to older people.

 

One suggestion, easily achieved is to make tapes or CD's of your services using the facilities of your sound system, and then deliver those recordings to these friends. Clearly they need to agree and have the facilities to play them but it has been found that people appreciate being remembered in this way.

 

Copying takes a few minutes and can be arranged with your local Talking Newspaper if you do not have the facilities at your own premises. Tapes need to be posted or hand delivered and recovered for re-use, CD's are not re-useable. You need somebody who will be prepared to 'do the work' week after week and a supply of cassette tapes and/or CD's. CD's purchased in bulk are remarkably inexpensive and are cheaper to post.

 

 

Employment

 

Considerable government support is available to assist people who feel that they cannot work, because of a disability, overcome those difficulties. The Department of Work and Pensions through the 'Access to Work' programme, work with the individual, not the employer, to provide what-ever facilities are necessary to disabled people overcome employment based issues. They do however make it clear that the provision they make is for the individual to get to work, not just to make life in general more convenient. 

 

Support is given to 'employees' in many ways. The employment position of some Ministers, particularly those who are non-stipendiary creates some challenges, this should not however be allowed to put off an application by an individual for assistance where it is felt it would be granted in any other form of employment. Representatives of the programme are located in various employment offices around the country. On receipt of an application they will either attend themselves to assess the need or more likely will send a qualified specialist in ergonomics, IT, social inclusion etc. to visit the applicant to make a full assessment of the need. The central office for the UK for this programme is located in London, Mr Rick Caruso is a national expert on what the programme can and cannot offer and if a disagreement seems unresolvable locally he is prepared to intervene in appropriate cases.

 

When considering people for employment in any role it MUST be remembered it is not for the interview panel to decide if a person is capable of carrying out the function applied for. The individual must be judged against the person description and job requirements prepared beforehand, as other applicants would be. If the individual, once they understand the requirements of the post, believes that they can carry it out, with or without the support mentioned above, then equal opportunities legislation and disability discrimination legislation requires that they should be given equal opportunity alongside others.

 

 

Sources of Funding

 

A range of funds are available to churches, which might be prepared to support your projects. Local Councils do have small budgets to help local community halls and village halls. A case is known where a church was supported with the provision of an accessible toilet. This church did have to prove that the building was 'extensively' used by the public for a variety of purposes, as a village hall might be. Your Council is an unlikely but possible source.

 

The Methodist Church, Resourcing Mission Office in Manchester, publishes lists of Charitable Trusts to which applications may be made. These are available by post or e-mail.

 

Fund-raising for a worthwhile cause has forever been a part of  church life. If you know what your targets are and set your members a challenge, they will probably respond appropriately.

 

 

 

 

 

 

 

 

 

 

Useful Publications and contacts

 

 

The Methodist Resources catalogue.

 

 

'Widening the eye of the Needle' from Church House Bookshop 020 7898 1306 www.chpublishing.co.uk £10.95. (Every Church should have one)

 

 

Roofbreaker Guide 'Through the Roof'  www.throughtheroof.org

Versions of this guide are available from Jo. Stephens at St. Johns College, Nottingham, entitled - 'Guidelines to Accessible and Inclusive Ministry' and 'Guidelines to ensure your Youth ministry is inclusive of people with disabilities'.  A limited number are available by post by arrangement with Jo at joke.stephens@talktalk.net

 

 

An Essex based charity, InterAct, offers Christian based mental health awareness training for churches and supports Mind and Spirit groups which meet in centres around the county. Contact them on 01245 608201. www.interact.org.uk

 

 

Older People and the Church £8.50 from Methodist Publishing House (Useful book based on practical experience)

 

 

Catalogues from organisations

RNID 0207 296 8000 www.rnid.org.uk., or

RNIB 0845 766 9999 www.rnib.org

 

 

 

Church __________________

 

 

Seen By……………………. Date……….

 

Seen By……………………. Date……….

 

Seen By……………………. Date……….